I am in charge body snatcher!….
awareness / Body Snatchers / careers / Chronic Illness / Chronic Pain / Confidence / Ehlers-Danlos Syndrome / Hospital Glam / Hospital visits / Invisible illness / Pelvic Pain / Self esteem / Spoonie Life / Support / Time Out

I am in charge body snatcher!….

Sorry I haven’t posted in a while, I have had an EXTREMELY busy Summer with the kids and then the return to school. We had fun and I absolutely loved having that time together but boy did it feel like a marathon towards the last two weeks! It was and is hard work and I have … Continue reading

EDS and me…
awareness / Beauty / Childhood / Chronic Illness / Chronic Pain / Confidence / Ehlers-Danlos Syndrome / Hospital visits / Instagram / Invisible illness / Self esteem / Spoonie Life / Support / Time Out

EDS and me…

I decided to share this video in honour of Ehlers Danlos Awareness Month May 2017. Please feel free to share!❤️ Some say Ehlers Danlos Syndrome (EDS) only means you are extra bendy….some say Ehlers Danlos isn’t progressive….you only need to look at my before and after pictures to see progression……you only need a glance at … Continue reading

Embrace the ‘write off days’…
Beauty / Chronic Illness / Chronic Pain / Fashion / Invisible illness / Makeup / Online shopping / Skin care / Spoonie Life

Embrace the ‘write off days’…

  I’m not sleeping very well at the minute and I’m going through a pain flare. It has gone really cold again and I find going outside so painful. Today I got up with kids and got them ready, fed and sorted for school and then I flopped back into bed. I pretty much stayed … Continue reading