EDS and me…
awareness / Beauty / Childhood / Chronic Illness / Chronic Pain / Confidence / Ehlers-Danlos Syndrome / Hospital visits / Instagram / Invisible illness / Self esteem / Spoonie Life / Support / Time Out

EDS and me…

I decided to share this video in honour of Ehlers Danlos Awareness Month May 2017. Please feel free to share!❤️ Some say Ehlers Danlos Syndrome (EDS) only means you are extra bendy….some say Ehlers Danlos isn’t progressive….you only need to look at my before and after pictures to see progression……you only need a glance at … Continue reading

Embrace the ‘write off days’…
Beauty / Chronic Illness / Chronic Pain / Fashion / Invisible illness / Makeup / Online shopping / Skin care / Spoonie Life

Embrace the ‘write off days’…

  I’m not sleeping very well at the minute and I’m going through a pain flare. It has gone really cold again and I find going outside so painful. Today I got up with kids and got them ready, fed and sorted for school and then I flopped back into bed. I pretty much stayed … Continue reading

A Simple Guide to Ehlers Danlos Syndrome
Chronic Illness / Chronic Pain

A Simple Guide to Ehlers Danlos Syndrome

Originally posted on The Zebra Mom:
“You’re suffering from Fibromyalgia!” “You’re depressed!” “You’re imagining it!” “You’re malingering!” “You’re attention seeking!-” “No I’m not – I have Ehlers Danlos Syndrome!” Ehlers Danlos Syndrome (EDS) is a condition that is poorly understood, even by many in the medical professions. It is essentially a defect in the production…

I’m not the same person that walked into the storm…..
Accessories / Beauty / Chronic Illness / Chronic Pain / Fashion / Makeup / Online shopping / Skin care

I’m not the same person that walked into the storm…..

#spoonie #depression #suicideawareness As there is so much awareness focused on suicide and mental health at the moment, I have decided to open up more than I have ever before about my personal journey. My reasons for sharing my journey are in the hope that I may help someone else feel less alone, understand what … Continue reading

Shoes glorious shoes….
Accessories / Beauty / Chronic Illness / Chronic Pain / Fashion / Online shopping

Shoes glorious shoes….

#spoonfulsofglitter Some foot inspiration for you! If you have to wear comfy, wear comfy with style! What are your favourite comfort shoes? These are a few of my favourite comfy shoes! 👸🏼Toms, these are so light and comfy and come in so many different designs! One for every outfit! They look fantastic with a pair … Continue reading