An open letter to the Mum in pain….
anxiety / awareness / Bereavement / Chronic Illness / Chronic Pain / depression / Ehlers Danlos Syndrome / Invisible illness / Pelvic Pain / PND / PTSD / Spoonie Life

An open letter to the Mum in pain….

Dear Mum in pain I just wanted you to know I see you, I see you and I feel your pain. I know how much it took for you to climb out of your warm bed and pick out your outfit for the day. I know you think you look a mess. You feel so … Continue reading

I am in charge body snatcher!….
awareness / Body Snatchers / careers / Chronic Illness / Chronic Pain / Confidence / Ehlers-Danlos Syndrome / Hospital Glam / Hospital visits / Invisible illness / Pelvic Pain / Self esteem / Spoonie Life / Support / Time Out

I am in charge body snatcher!….

Sorry I haven’t posted in a while, I have had an EXTREMELY busy Summer with the kids and then the return to school. We had fun and I absolutely loved having that time together but boy did it feel like a marathon towards the last two weeks! It was and is hard work and I have … Continue reading

EDS and me…
awareness / Beauty / Childhood / Chronic Illness / Chronic Pain / Confidence / Ehlers-Danlos Syndrome / Hospital visits / Instagram / Invisible illness / Self esteem / Spoonie Life / Support / Time Out

EDS and me…

I decided to share this video in honour of Ehlers Danlos Awareness Month May 2017. Please feel free to share!❤️ Some say Ehlers Danlos Syndrome (EDS) only means you are extra bendy….some say Ehlers Danlos isn’t progressive….you only need to look at my before and after pictures to see progression……you only need a glance at … Continue reading

Trying to work when you suffer from chronic illness, pain and mobility limitations….
awareness / Chronic Illness / Chronic Pain / Confidence / Ehlers-Danlos Syndrome / Hospital visits / Instagram / Invisible illness / Self esteem / Spoonie Life / Support / Time Out

Trying to work when you suffer from chronic illness, pain and mobility limitations….

Hi guys, sorry I haven’t blogged in a while, I’ve been stuck in hospital for the last five weeks and lost my blog mojo temporarily. I posted this post to Facebook in honour of EDS Awareness Month (Ehlers-Danlos Syndrome) and decided I wanted to add it to my blog. Trying to work whilst living a … Continue reading

A Simple Guide to Ehlers Danlos Syndrome
Chronic Illness / Chronic Pain

A Simple Guide to Ehlers Danlos Syndrome

The Zebra Mom “You’re suffering from Fibromyalgia!” “You’re depressed!” “You’re imagining it!” “You’re malingering!” “You’re attention seeking!-” “No I’m not – I have Ehlers Danlos Syndrome!” Ehlers Danlos Syndrome (EDS) is a condition that is poorly understood, even by many in the medical professions. It is essentially a defect in the production of collagen, an … Continue reading

Look good, feel better….
Accessories / Beauty / Chronic Illness / Chronic Pain / Fashion / Makeup / Online shopping / Skin care

Look good, feel better….

Most chronic illness and pain conditions are classed as ‘invisible’ this is because in most cases the illness is hidden… The illness and pain is usually hidden because the sufferers have an unbelievable strength and ability to cope and are able to hide exactly how they are feeling. Chronic means ongoing, there is no time … Continue reading