EDS and me…
awareness / Beauty / Childhood / Chronic Illness / Chronic Pain / Confidence / Ehlers-Danlos Syndrome / Hospital visits / Instagram / Invisible illness / Self esteem / Spoonie Life / Support / Time Out

EDS and me…

I decided to share this video in honour of Ehlers Danlos Awareness Month May 2017. Please feel free to share!❤️ Some say Ehlers Danlos Syndrome (EDS) only means you are extra bendy….some say Ehlers Danlos isn’t progressive….you only need to look at my before and after pictures to see progression……you only need a glance at … Continue reading

Trying to work when you suffer from chronic illness, pain and mobility limitations….
awareness / Chronic Illness / Chronic Pain / Confidence / Ehlers-Danlos Syndrome / Hospital visits / Instagram / Invisible illness / Self esteem / Spoonie Life / Support / Time Out

Trying to work when you suffer from chronic illness, pain and mobility limitations….

Hi guys, sorry I haven’t blogged in a while, I’ve been stuck in hospital for the last five weeks and lost my blog mojo temporarily. I posted this post to Facebook in honour of EDS Awareness Month (Ehlers-Danlos Syndrome) and decided I wanted to add it to my blog. Trying to work whilst living a … Continue reading

A Simple Guide to Ehlers Danlos Syndrome
Chronic Illness / Chronic Pain

A Simple Guide to Ehlers Danlos Syndrome

Originally posted on The Zebra Mom:
“You’re suffering from Fibromyalgia!” “You’re depressed!” “You’re imagining it!” “You’re malingering!” “You’re attention seeking!-” “No I’m not – I have Ehlers Danlos Syndrome!” Ehlers Danlos Syndrome (EDS) is a condition that is poorly understood, even by many in the medical professions. It is essentially a defect in the production…

Look good, feel better….
Accessories / Beauty / Chronic Illness / Chronic Pain / Fashion / Makeup / Online shopping / Skin care

Look good, feel better….

Most chronic illness and pain conditions are classed as ‘invisible’ this is because in most cases the illness is hidden… The illness and pain is usually hidden because the sufferers have an unbelievable strength and ability to cope and are able to hide exactly how they are feeling. Chronic means ongoing, there is no time … Continue reading

I’m not the same person that walked into the storm…..
Accessories / Beauty / Chronic Illness / Chronic Pain / Fashion / Makeup / Online shopping / Skin care

I’m not the same person that walked into the storm…..

#spoonie #depression #suicideawareness As there is so much awareness focused on suicide and mental health at the moment, I have decided to open up more than I have ever before about my personal journey. My reasons for sharing my journey are in the hope that I may help someone else feel less alone, understand what … Continue reading