Chronic Illness / Chronic Pain

A Simple Guide to Ehlers Danlos Syndrome

The Zebra Mom

“You’re suffering from Fibromyalgia!” “You’re depressed!” “You’re imagining it!” “You’re malingering!” “You’re attention seeking!-”

“No I’m not – I have Ehlers Danlos Syndrome!”

Ehlers Danlos Syndrome (EDS) is a condition that is poorly understood, even by many in the medical professions. It is essentially a defect in the production of collagen, an essential component of connective tissue .

Many articles about EDS contain medical terminology that can be difficult to understand. The purpose of this guide is to put the medical terminology in plain language and help non-affected family and friends understand exactly how EDS affects people and their day-to-day lives. The medical terminology is included in italics. Links to web pages are included throughout the article if you want to conduct your own research.

Why is it called Ehlers Danlos Syndrome (EDS)?

The name of the condition itself is quite a mouthful! Ehlers Danlos Syndrome (Eylerz-Dan loss Sin-drome) is…

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